tag:blogger.com,1999:blog-1956753462655580942.post5050678702764158445..comments2024-01-26T03:13:25.286-05:00Comments on Josie's Journey : And now we have a diagnosis. Nicole Zeitzer Johnsonhttp://www.blogger.com/profile/05233670258530847611noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-1956753462655580942.post-12238020447913249862021-07-20T03:08:27.269-04:002021-07-20T03:08:27.269-04:00My son was diagnosed with a rare form absence stat...My son was diagnosed with a rare form absence status epilepsy. His seizures show no symptoms until the seizure has lasted for hours! The only warning we had was he started acting only tired at first then gradually he started acting confused and from there for 24 hours he didn't know what year it was, where he went to school, or even what grade he was in etc. his motors skills were perfect and he talked to everyone normal the entire time, he just couldn't answer certain questions. The hospital kept him overnight and gave him fluids and in 24 hours he slowly started remembering and they said he was good and sent us home. We know now that he was having a constant seizure the ENTIRE TIME of his confusion! Almost 3 months later he begins having the same symptoms when I woke him up for his 2nd day of school. we are sent for an EEG, which revealed at 10 am he was actually having what the neurologist referred to as the worst EEG he had seen) we then were sent to a different children's hospital where they observed him until 8:00pm, all this time my son passes every test, he is talking and his motor skills are completely normal! They finally begin his EEG around 9:00pm. It reveals he is still in seizure! They are blown away. Say they have never seen an absence case like his and they quickly gave him a big dose of adavan which immediately stops the seizure and he is able to regain his memory immediately. Does anyone have a child who has these same symptoms? His neuro doctor ordered a brain glucose test, but when we went for a follow up last week they said the test had been canceled and they had no idea what happened? When I asked if they were going to draw his blood and re do the test, they said that his medicine was controlling the seizures so far so they didn't feel the need to do the test! I need advice and some direction. I searched further; visited epilepsy websites, blogs. I find info about someone having the same symptoms. I was really determined. Fortunately for me, I stumbled on a testimony of someone who had epilepsy for several years and was cured through herbal medication. I read awesome stories of people whose condition were worse . But due to numerous testimonies. I was more than willing to try it. I contacted the doctor Gabriel, and my son used the Nectar herbs. It became a miracle for my son free from rare form absence status epilepsy within 3 months. The Nectar medicine worked without any trace of side effects on my son. totally cure. I decided to share my son story to tell people out there, that there is a hope for those with epilepsy using nectar medicine and anyone who suffers from seizures can be cured. Email dr.gabriel474@gmail.comSanchez Thompsonhttps://www.blogger.com/profile/08727691369410682155noreply@blogger.comtag:blogger.com,1999:blog-1956753462655580942.post-43748149425375166832020-07-05T04:18:55.382-04:002020-07-05T04:18:55.382-04:00HOW I GOT CURED OF HERPES DISEASE
I'm here to ...HOW I GOT CURED OF HERPES DISEASE<br />I'm here to testify about what DR. ANUGE did for me. I have been suffering from (HERPES) disease for the past 5 years and had constant pain,especially inside my body. During the first year,I had faith in God that i would be healed someday. This disease started circulating all over my body and i have been taking treatment from my doctor, few weeks ago i came across a testimony of one lady on the internet testifying about a Man called DR. Anuge on how he cured her from herpes disease. And she also gave the email address of this man and advise anybody to contact him for help for any kind of sickness that he would be of help.so I emailed him telling him about my (HERPES) he told me not to worry that i was going to be cured!! Well i never believed it,, well after all the procedures and remedy given to me by this man few weeks later i started experiencing changes all over me as DR. ANUGE assured me that i will be cured,after some time. i went to my doctor to confirmed if i have be finally healed behold it was TRUE, the test came out negative. So friends my advise is if you have such sickness or any other at all you can contact DR. Anuge for help. Email} dranuge@gmail.com WhatsApp /call +2348164866838patrick morrisonhttps://www.blogger.com/profile/01952525098884954092noreply@blogger.comtag:blogger.com,1999:blog-1956753462655580942.post-7334440350016916792019-01-11T20:46:09.981-05:002019-01-11T20:46:09.981-05:00My life is beautiful thanks to you, Mein Helfer. L...My life is beautiful thanks to you, Mein Helfer. Lord Jesus in my life as a candle light in the darkness. You showed me the meaning of faith with your words. I know that even when I cried all day thinking about how to recover, you were not sleeping, you were dear to me. I contacted the herbal center Dr Itua, who lived in West Africa. A friend of mine here in Hamburg is also from Africa. She told me about African herbs but I was nervous. I am very afraid when it comes to Africa because I heard many terrible things about them because of my Christianity. god for direction, take a bold step and get in touch with him in the email and then move to WhatsApp, he asked me if I can come for treatment or I want a delivery, I told him I wanted to know him I buy ticket in 2 ways to Africa To meet Dr. Itua, I went there and I was speechless from the people I saw there. Patent, sick people. Itua is a god sent to the world, I told my pastor about what I am doing, Pastor Bill Scheer. We have a real battle beautifully with Spirit and Flesh. Adoration that same night. He prayed for me and asked me to lead. I spent 2 weeks and 2 days in Africa at Dr Itua Herbal Home. After the treatment, he asked me to meet his nurse for the HIV test when I did it. It was negative, I asked my friend to take me to another nearby hospital when I arrived, it was negative. I was overwhite with the result, but happy inside of me. We went with Dr. Itua, I thank him but I explain that I do not have enough to show him my appreciation, that he understands my situation, but I promise that he will testify about his good work. Thank God for my dear friend, Emma, I know I could be reading this now, I want to thank you. And many thanks to Dr. Itua Herbal Center. He gave me his calendar that I put on my wall in my house. Dr. Itua can also cure the following diseases ... Cancer, HIV, Herpes, Hepatitis B, Inflammatory Liver, Diabetis, Bladder Cancer,Colorectal Cancer,HPV,Breast Cancer,Kidney Cancer,Leukemia,Lun,Fribroid,Infertility,Parkinson's disease,Inflammatory bowel disease ,Fibromyalgia, recover your ex. You can contact him by email or whatsapp, @ .. drituaherbalcenter@gmail.com, phone number .. + 2348149277967 .. He is a good doctor, talk to him kindly. I'm sure he will also listen to you.Achima Abelardhttps://www.blogger.com/profile/07352625573124440289noreply@blogger.comtag:blogger.com,1999:blog-1956753462655580942.post-85813868920272639802018-11-22T23:22:54.383-05:002018-11-22T23:22:54.383-05:00Hello i am Teresa and i was just told yesterday 11...Hello i am Teresa and i was just told yesterday 11/21/2018 my granddaughter who i am now raising has FoxG1 i have knowen sence the day Flo was born something was wrong everyone told me i was crazy. It turns out 8 years later i was right and i am heart broken. I am told we are lucky she does walk and has limited words. She has her own language we understand Flo. But i am sad. I am also happy she brings so much joy. We have always treated her as if nothing was wrong with her when we got her 2 yrs. Ago she was in wheelchair and i said Flo i cant carry you, so lets walk up the steps and 3 weeks after we got her she was walking and we are always repeating words to her and she says about 8 to 10 words . We tought her to eat with baby spoons . And to drink from 360 cups now. But sadness is always in my heart. We are thankful she is alive. Anonymoushttps://www.blogger.com/profile/11383641047880837684noreply@blogger.comtag:blogger.com,1999:blog-1956753462655580942.post-462106576814339062017-03-23T16:01:20.085-04:002017-03-23T16:01:20.085-04:00"When he smiles, all is well in the world&quo..."When he smiles, all is well in the world" <br />Hi there, I work as a Nanny to a little guy who has foxg1. He just turned 9 yrs old and I met them when he was turning 3yrs old. He is the sunshine of our life! He's perfect and beautiful. He has a loving family with a couple siblings. They are a huge gift to him. We are out here in CA. and will leave the details at that since I'm not his parent. I just want to send love and hope to you and your family. I have learned...experienced that words really are not necessary to communicate and that when he smiles, it's by far the warmest and most sincere smile you will ever witness. I know how fortunate I am to know him. Be sure to take good care of yourself. <br />With love and Aloha, Christinehotrodsandlowridershttps://www.blogger.com/profile/06132488494951584238noreply@blogger.comtag:blogger.com,1999:blog-1956753462655580942.post-13185216034927031452016-10-17T08:51:19.053-04:002016-10-17T08:51:19.053-04:00Hi, My name is Mechelle Sutton , and my son Ben wa...Hi, My name is Mechelle Sutton , and my son Ben was diagnosed with foxg1 last year. He will be nine next month. He is our precious angel and has taught us so much , just like Josie has taught you things you would have never known before we entered this world of 'special needs' . The way I think of Ben to get me through the heartache and horrible pain of watching him suffer so many seizures, is to remember that there are few people in the world like him . Josie and Ben will never say an unkind word, or even have an unkind thought. They will never know the feeling of hatred, or wanting to hurt something or someone. They are indeed the most special little people in the world. God bless you and Josie.Anonymoushttps://www.blogger.com/profile/08677460133531237697noreply@blogger.comtag:blogger.com,1999:blog-1956753462655580942.post-45066613678894724852016-07-31T23:52:23.980-04:002016-07-31T23:52:23.980-04:00HI my name is shelly stone and we are in Texas. My...HI my name is shelly stone and we are in Texas. My son Hudson is 4 years old and has just been confirmed a FOXG1 syndrome diagnosis. I am at a loss for words and hope. Your sweet Josie is the exact face of joy and laughter my son has. They are identical. I know this sounds a bit forward or crazy, but i would do anything to meet you and sweet Josie just to know somebody else sharing this trial..this journey. Our God is big and he is working to do amazing things in our lives. Hopefully he will allow us to meet, or visit on the phone for a time. YOu are extradionary the way you share your story, your life, your sweet Josie. I am in awe of your unconditional love and faithfulness. Thank you for sharing our story. So grateful to have found youAnonymoushttps://www.blogger.com/profile/03468762015594172659noreply@blogger.comtag:blogger.com,1999:blog-1956753462655580942.post-49074231844236032122016-07-31T23:49:03.453-04:002016-07-31T23:49:03.453-04:00HI my name is shelly stone and we are in Texas. My...HI my name is shelly stone and we are in Texas. My son Hudson is 4 years old and has just been confirmed a FOXG1 syndrome diagnosis. I am at a loss for words and hope. Your sweet Josie is the exact face of joy and laughter my son has. They are identical. I know this sounds a bit forward or crazy, but i would do anything to meet you and sweet Josie just to know somebody else sharing this trial..this journey. Our God is big and he is working to do amazing things in our lives. Hopefully he will allow us to meet, or visit on the phone for a time. YOu are extradionary the way you share your story, your life, your sweet Josie. I am in awe of your unconditional love and faithfulness. Thank you for sharing our story. So grateful to have found youAnonymoushttps://www.blogger.com/profile/03468762015594172659noreply@blogger.comtag:blogger.com,1999:blog-1956753462655580942.post-57954733958934997502015-11-26T21:34:06.798-05:002015-11-26T21:34:06.798-05:00She is amazingly cute!!! My son also has Fox G1. ...She is amazingly cute!!! My son also has Fox G1. We just found out. But he is 10 years old and we have been looking for a reason for his disability for 9 years, so it was exciting for us to finally find out why he is.. the way he is. We didn't know if it was someone's "fault" and we are glad that it is not anyone's fault. At the same time I have been feeling sad and overwhelmed and sometimes devastated since he was diagnosed with cerebral palsy at age 1. Just wanted to say how adorable she is, and she is holding her head up like a champ!! Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1956753462655580942.post-34707812188066871872015-11-26T21:33:27.753-05:002015-11-26T21:33:27.753-05:00She is amazingly cute!!! My son also has Fox G1. ...She is amazingly cute!!! My son also has Fox G1. We just found out. But he is 10 years old and we have been looking for a reason for his disability for 9 years, so it was exciting for us to finally find out why he is.. the way he is. We didn't know if it was someone's "fault" and we are glad that it is not anyone's fault. At the same time I have been feeling sad and overwhelmed and sometimes devastated since he was diagnosed with cerebral palsy at age 1. Just wanted to say how adorable she is, and she is holding her head up like a champ!! Anonymousnoreply@blogger.com