Here we go...
I think it's time I start writing about our story. For one, it will help me chronicle and remember the details of our journey. Second, perhaps it can serve as useful information for someone else. And the third reason is purely therapeutic. This will be the home of 'Josie's Journey', the unraveling story of our precious little baby girl's fight to develop. Josie is just over one (13.5 months). She still cannot sit up unassisted, roll over, or do anything above those skills. She has been diagnosed with loose terms such as global developmental delays, developmentally disabled, severe hypotonia, static encephalapothy, and cortical vision impairment. After many, many tests, we still do not know the cause, actually by now I should use the more familiar language and say there is no known etiology. We've been to oh so many doctors; each week there's usually at least one appointment - I'm talking 2 neurologists, 3 ophthalmologists, 1 optometrist, a me...