To "Say" Thanks
Josie was born the day before Thanksgiving 11 years ago and truly defined the meaning of giving thanks. Allow me to rattle the reasons why I am thankful. I am thankful for her pure joy. Her resilience. Her love. Her strength. Her energy. Her silliness. I am so thankful that she gave me a purpose that I would have never known. I am thankful that she gives me the courage to live my purpose, not only for her but for every child and adult in the world with FOXG1 syndrome , and more. As a parent-led organization, we are actually improving the landscape for rare disease drug development. Why? Because we have no time to waste. We are helping contribute massively to science for major neurological diseases like autism, Alzheimer's, brain cancers, and more. No joke. Our work has the potential to solve major disorders that affect millions of people and knowing that fills me with even more motivation and inspiration - and gratitude. I was able to dive in because of ...