Josie's Journey

I'm officially a published writer for The Mighty! It's an incredible site with the tagline: We face disability, disease and mental illness together. It's user generated content, generated by people who are faced with the aforementioned challenges. I feel very lucky to have a platform to talk about Josie and Foxg1, all while raising awareness and potentially spreading some positivity to other parents of special needs children. CLICK TO READ THE STORY HERE Or read the text here: When I Hear These 3 Words as a Special Needs Parent Is it possible, for what kids with FoxG1 lack in terms of cognitive and physical ability, they make up for in cuteness and sweetness? You might be reading this and thinking, how is there anything cute about a severe, rare, neurological condition that hinders the ability for children to do most things? Well, let me tell you about my FoxG1 girl, Josie. She was born with this doozy of a genetic disorder. She is four-and-a-half-years ol

Maybe when things are going great, I feel less inclined to blog. No news is good news, as they say. But, there is so much good news to report. Where do I begin? These are all the things I want to share: 1. Josie is going to school in September! 2. She has been seizure-free for three months now! 3. She's so much more alert and present and just happier than ever! 4. Tanner has melted my heart with the things he's been saying lately. 5. A music group I'm a member of held an event and raised money for Foxg1! All of the above deserve a separate post, but I'm going to cover as much ground as possible while I'm here. 1. School. It's happening. Josie will be going to the Little Village School in September. Oh the range of emotions I've been experiencing lately. It really hit me hard when her therapies at home came to an end. All these amazing therapists that have been coming over three times a week for the past three years will no longer be coming over