Josie hasn't gained any weight in 6 months. In fact, she lost a pound. She was 17 pounds in Sept. and now the scale says 16. I don't get it. She eats all day and her legs look chubby. The metabolic dr. found nothing wrong. Dr. Palevsky thinks it's not about caloric intake, but rather the way her body uses the energy from food. In his words: she's getting fed enough food, and she is getting sufficient calories, it's just that she doesn't have the capacity to utilize the nutrients enough for her to grow.
Dr. P feels hyperbarics could help this. He also says: If there has been a vasculitis contributing to her ongoing developmental and growth issues, and not an as-yet-to-be-determined syndrome that would help you understand everything that is going on, the vasculitis is happening at all levels of the body, including the gut and the brain.
During our last visit he recommended we change her breakfast to dinner foods. I mentioned in an earlier post that he has her on an Ayurvedic diet to energize her body. His thinking is to add protein-rich energizing foods right at the beginning of the day - "fire up her system". We've been doing that and I was sure she was gaining weight, and was pretty surprised to see she actually lost weight. I'm reading other stories online of babies who didn't gain weight for an extended period of time, but most are related to the baby starting to crawl and moving a lot, so that doesn't apply.
On a positive note, her head circumference is growing! Exhale.
Music reference: "The Weight" hardly needs explanation. It's been called one of the greatest rock and roll songs of all time by Rolling Stone and others. The classic song by the folk rock band called The Band (how did they get away with that?) including Robbie Robertson and the late great Levon Helm, might be one of the most covered songs out there. Here's the soulful Mavis Staples live in concert singing The Weight And here's a documentary about the making of The Band's self-titled classic album the song appears on.